• Skip to main content
Freeing Teresa

Freeing Teresa

A True Story about My Sister and Me — by Franke James

  • News
  • Audiobook
    • Listen Now
    • Meet the Cast
  • Interviews
  • Awards
  • Reviews
  • Authors
    • Videos
    • Stories
  • Buy Book

#freeingteresa

Activism begins at home

November 18, 2024 by Franke James

Split image: Pushing for Change logo of a winged grinning skull was designed by Kevin Brown opposite activist sisters Franke James holding their framed Human Relations Gold award and Teresa Heartchild with the orange book Freeing Teresa

My thought today is that activism begins at home! We may think activism is all about crowds marching in the streets with placards waving and megaphones blaring. But the first opportunity is at home with our families.

In our private decision-making, when nothing is public yet, threats to civil and human rights can happen too easily. Ask yourself, would you stand up to your family to protect your sibling’s right to be different? To be Gay or Transexual or Disabled—and free to make their own choices?

My sister Teresa and I were honoured to appear on Cruisin’ Cripples podcast, Pushing for Change, to talk about activism. But sadly, speaking up to our own family wasn’t enough. I had to take action to protect Teresa—which is what my memoir Freeing Teresa is all about.

On Family Activism

An excerpt from my podcast interview with host Kevin Brown:

K.B.: It’s an amazing story… You had already agreed that you were going to take your sister in. Why do you think that was not a viable option for your siblings?

FJ.: Well, I think there are two things. There were power issues. My sister, Deirdre (pseudonym), was older than me, and who was this young sibling who was saying, no, it’s not going to work… And there was a whole group of people surrounding Teresa who said that she had to go into a nursing home. And the other reason was it was a free ticket for life. Teresa would’ve had her healthcare and room and board covered. But at what cost? It was so limiting to be in an institution. I was just horrified.

K.B.: Certainly… So, I know Teresa is not the only one who has experienced something similar. So what is the alternative? If someone can’t care for them, they go into an institution.

“There are many options.”

FJ.: There are many people with Down syndrome (which Teresa has) who are helped by the system to live in the community… The Canadian Charter says that we’re all equal. The UN Convention on the Rights of People with Disabilities says they have the right to live in places of their choice. And yet Teresa wasn’t given that choice. Initially, I thought that Teresa was the lone exception being pushed off to a nursing home. And over the years, I’ve learned that there are many thousands of “Teresas” across Canada and the U.S.A., and even worldwide. The UN calls it a massive human rights violation.

Activism in action: Getting the government apology

K.B.: I know you had a Change.org petition and got an apology letter.

FJ.: Yes. But let me tell you about that activism… On March 21st, Teresa launched the Change.org petition, calling for human rights to be respected and the government to say sorry, and we got an outpouring of support, 25,000 people. Lovely comments. Wonderful. If anybody is ever in a position to sign one of these petitions, please do. It makes an enormous difference.

Teresa's Change.org petition launched on Mar 21,2014 which is World Down Syndrome Day. In the video Teresa tells how the government took away her right to decide where she lived, and put her into a nursing home. Teresa asked the government to say sorry because it was wrong.

Unfortunately, the government didn’t pay attention in 2014. So even though we got so many signatures, it took another two years of activist campaigning and more media attention to put their feet to the fire and get the Ontario Minister of Health to apologize to Teresa on TV on her birthday, July 22nd, 2016.

K.B.: Well, if one could ask for a birthday gift, that would be the highest of gifts received.

The Minister’s apology on TV in 2016

Global News shone the spotlight on Teresa. The driving force for this written apology came from Global News. Journalist Christina Stevens was determined to get answers on how this travesty happened to Teresa.

Stevens did a two-part news story about Teresa: “Ontario woman forced into long-term care wants apology from provincial government.” She did some remarkable digging to find out how many other people with developmental disabilities are in long-term care. She discovered that Teresa is just the tip of the iceberg. There are more than 2,900 “Teresas” living in Ontario long-term care facilities.

Stevens pressed Minister Hoskins for an apology for Teresa. Minister Hoskins sent a statement that was aired on Global News on July 22, 2016: “I would like to apologize to Ms. Pocock and her family for her being placed in a seniors residence…”

Teresa’s Activism resulted in an official letter!

Teresa's handwritten letter opposite the Ontario Minister's letter of apology. Teresa Heartchild's letter to Minister Hoskins Sept 23, 2016: Dear Minister Dr. Hoskins, It was nice that you apologized on TV for putting me into a nursing home. But it's weird that you have not sent me the apology in writing. Did you forget? Please send me a letter. I did not want to live in a nursing home. I am capable. I am an artist and a poet. My book is “Pretty Amazing” and totally amazing. Sincerely,Teresa Heartchild. | Minister Hoskins Letter - Dear Ms. Teresa: Thank you for writing to me and for sending me a copy of your delightful book, Pretty Amazing. I would like to apologize to you and your family for your unsatisfactory placement experience. Your sister, Ms. Franke James, also wrote to me on your behalf in February 2016. Her passion and commitment to your well-being is evident in the extensive materials she had prepared, as well as the photos she provided of you enjoying life in British Columbia. I can appreciate that your experience was challenging for you and your family. We continually strive to improve people's experience in Ontario's health care system to ensure that the right care is provided to Ontarians when and where they need it. Issues raised by your experience that your sister brought to my attention, as well as to the attention of the Select Committee on Developmental Services in January 2014, are very important. Thank you again for taking the time to write and for your wonderful gift. Yours sincerely,Dr Eric Hoskins, Minister

Listen to the full podcast on Spotify


Feedback: “Incredibly moving. A must-listen”

“I just finished listening to the episode featuring Franke James, and it was incredibly moving… This episode is a must-listen for anyone interested in human rights, family bonds, and the strength of the human spirit. Highly recommend!” S. H.

Filed Under: Interviews, News Tagged With: #audiobook, #downsyndrome, #freeingteresa, #memoir, franke-james, siblings

Teresa’s Top Ten Countdown

October 26, 2024 by Freeing Teresa


Teresa at home in Vancouver, wearing a big smile and a favourite I Love NY shirt
Teresa at home in Vancouver, wearing a big smile and a favourite I Love NY shirt

Ten Years of Celebrations!

Yes, it has been ten years! The book, Freeing Teresa, tells of Teresa’s narrow escape from an end-of-life nursing home. Four of her older siblings insisted she needed to live there, but Teresa (and Franke) didn’t listen to them. Teresa is feisty and not someone who likes to be bossed around. Proving the naysayers wrong, she has lived successfully in the community for over a decade. And she is celebrating all the wonderful things she has done in this Top Ten Countdown from 2014 to 2023! (Thankfully Bill and I believed all along that Teresa had many places to go, things to do, and people to meet.)

Teresa celebrated the ten year anniversary with a glass of champagne! She is wearing pink glasses, a tie-dye shirt and ball cap

Teresa celebrated her ten year anniversary of freedom with a well-earned glass of champagne!

Teresa bounces helium balloons around

Here is our top ten countdown…

TEN (10) Birthdays

Teresa leans forward and blows out the candles on her 2023 birthday cake. She is surrounded by colourful helium birthday balloons.
Photos of Teresa blowing out birthday candles in 2014, 2015, 2016, 2017, 2018, 2019, 2020, 2021, and 2022

Ten birthdays, starting with the Big Five-Oh (50) on July 22nd, 2014. Then it was like playing dominoes, successfully knocking down 51 and 52, then 53, 54, 55, 56, and into the home stretch 57, 58, and bango! The 59th in 2023! Every year was great. How the years flew by! Congratulations Teresa! You did it with style—and we know that your Six-0h (60) will be just as amazing!

NINE (9) Tie-Dye Sweat Shirts. At least!

Teresa in nine different tie-dye shirts collected through the years

Over the years, Teresa has totally transformed her wardrobe, turning herself into a colourful superstar! She currently has at least nine tie-dye shirts in her room and has worn many more over the years. By the way, Teresa has also developed a passion for I ♥️ NY T-shirts. She has a half-dozen of those, too.

EIGHT (8) Medical Emergencies

Top Ten Countdown includes eight medical emergency photos from two hernia surgeries, two broken ankles, two dental surgeries, one blocked esophagus, and one nuclear octreotide scan — a cancer scare, but luckily, Teresa got the all-clear.

Two hernia surgeries, two broken ankles, two dental surgeries, one blocked esophagus, and one nuclear octreotide scan — a cancer scare, but luckily, Teresa got the all-clear.

SEVEN (7) Agencies Working Together

The Top Ten Countdown includes seven agency photos showing the fun support they provide and the warm relationships she's built

Teresa is receiving great support from the disability community and service agencies in BC. Spectrum Society for Community Living is her lead agency, and their team is doing a fabulous job. Teresa is also getting lots of support, advice and friendship from Inclusion BC, PLAN, Down Syndrome BC, Community Living BC, Canadian Down Syndrome Society, and Inclusion Canada.

SIX (6) Hundred Chicken Pies

Teresa loves chicken pies and eats, and draws them, and writes poems about them in this Top Ten Countdown

Who knows how many chicken pies Teresa has eaten over the last ten years? She loves chicken pies, starting with home-baked ones from Thrifty’s, to frozen no-chicken pies from Amy’s, to her current favourite, Costco chicken pies!

FIVE (5) Arts Grants

Teresa celebrating her five arts grants in this Top Ten Countdown

Teresa has earned two Canada Council travel grants, two DTES Small Arts Grants from the Vancouver Foundation, and one arts support grant from Spectrum Society. All this helped Teresa write and create two books, exhibit her art in three solo shows, participate in five group shows, show her videos at three film festivals (winning one silver award!), and travel to international exhibitions in Boston and Mexico.

FOUR (4) Vocations

The Top Ten Countdown wouldn't be complete without mentioning the four vocations Teresa has found: poet, self-advocate, artist and author.

Teresa has established herself as a poet, self-advocate, artist and author. The photos show Teresa speaking at the Carnegie Centre in DTES, marching for disability rights, holding up her artwork in her book Totally Amazing, and signing one of her books.

THREE (3) Amigos

photo of Teresa, Franke and Bill from Teresa's art show, Born to Represent.

Teresa, Franke, and Bill have lived together for ten years and have become great friends. “The Three Amigos,” as Teresa calls the trio. The photo is from her solo art show, Born to Represent, which was hosted by PLAN.

TWO (2) Sisters

Teresa and Franke hug in this photo taken at their home in Vancouver

Teresa and Franke have grown closer every day. And now their bond of sisterhood and love is ten years strong.

ONE (1) Champion with an Extra Chromosome

Teresa smiling confidently in this photo taken by Franke James at breakfast one morning

Teresa is very proud of the fact that she has Down syndrome and has become a strong advocate for disability rights. In fact, the Human Rights Commissioner of BC has named Teresa a “Champion for Change” for her advocacy work.

Happy Tenth Anniversary

Teresa and Franke celebrate their tenth anniversary together at the Top of Vancouver, the city's revolving restaurant, in December 2023. The dessert says Happy 10th Anniversary

Teresa and Franke celebrate their tenth anniversary together at the Top of Vancouver, the city’s revolving restaurant, in December 2023. Hooray!

What a countdown for a fun decade from 2014 to 2023!

Filed Under: News Tagged With: #caregiving, #downsyndrome, #freeingteresa, #memoir, #teresaheartchild, civil rights, franke-james, siblings

Freeing Teresa wins BIG at the NYC Big Book Awards!

October 2, 2024 by Franke James

Freeing Teresa scores a double-win in the NYC Big Book Awards for “Audiobook Nonfiction” and “Social/Political Change.”


Vancouver, BC, Canada—The NYC Big Book Award selected Freeing Teresa as a winner in two categories in the 2024 competition: Audiobook Nonfiction (for the full-cast audiobook) and Social/Political Change (for the print edition).

“We’re thrilled to receive these two awards from NYC Big Book Award. Writing this memoir has taken over ten years of familial blood, sweat, and tears,” said Franke James. “What happened to Teresa, is happening in many families. People are choosing “care” for people with intellectual disabilities, that they would never tolerate for themselves. “Care” that limits their opportunities in life. “Care” that restricts their freedom. Give people with intellectually disabilities a chance to lead full lives in the community—and they may astonish you.”

Franke James writes true stories that spark change
and inspire resilience (and resistance!)

Franke James, the author, and co-authors Teresa Heartchild and Billiam James, will accept the awards in person in New York City in May 2025. Freeing Teresa has received twelve international awards and prizes in 2024 from the Human Relations Indie Book Awards, the Firebird Book Awards, the NABE Pinnacle Book Achievement Award—and now the NYC Big Book Award.


Would you stand up to your family to protect your sister? Freeing Teresa audiobook ad with the NYC Big Book Awards Medal

This is an award-winning true story about disability rights colliding with ableism. It revolves around a key civil rights issue for all people with disabilities—the right to decide where you live.


“The result is more than a memoir: it’s a testimony to how ‘tickets to freedom’ are gained through fighting and love, displaying how Teresa’s own wishes add fuel to the fire of empowerment.”
D. DONOVAN, Sr. Reviewer, Midwest Book Review


About the NYC Big Book Award®

“We were delighted to see so many quality publishers and authors from around the world participate this year. I can’t wait to share these books with a global readership,” said awards sponsor, Gabrielle Olczak.

NYC Big Book Award received book submissions worldwide. Journalists, well established authors, small and large press, and first time indie authors participated in record numbers from the United States as well as countries such as Australia, Canada, China, Cyprus, France, Germany, India, Ireland, Israel, Italy, Mexico, New Zealand, Scotland, Singapore, Sweden, Switzerland, Taiwan, and the United Kingdom. The competition is judged by experts from different aspects of the book industry, including publishers, writers, editors, designers, booksellers, librarians and professional copywriters. Winners and distinguished favourites are based on overall excellence.

Publishers included Blackstone Publishing, Hachette Go, HarperCollins Leadership, Simon & Schuster, and many more.

See the 2024 list of winners and distinguished favourites at the NYC Big Book Awards.

Freeing Teresa orange audiobook cover with the NYC Big Book Award seal

Filed Under: Audiobook, Awards, News Tagged With: #audiobook, #bookawards, #downsyndrome, #freeingteresa, #memoir, #teresaheartchild, franke-james

Meet the 13 Actors Narrating the Freeing Teresa Audiobook

September 23, 2024 by Franke James

The Freeing Teresa audiobook is brought to life by a full cast of thirteen talented voice actors. It stars Jackie Blackmore, Lauren Potter, and Dayleigh Nelson, with a supporting cast of Cynthia Potvin, Bill Mackie, Paula Hoffmann, Rob Cottingham, Sidika Larbes, Geoff Sugiyama, Laurel Bailey, Divina Soriano-Leacock, Justin Smallbridge, and Roshni Kashyap.

The casting reflects the authors’ commitment to authentic representation. Two of the actors have Down syndrome, just like the characters they play. U.S. actor Lauren Potter takes on the lead role of Teresa Heartchild, whose struggle for freedom and independence is the heart of this story. Roshni Kashyap is a Canadian artist and author who performs as a young woman who was unfairly institutionalized.

A unique feature of this full-cast audiobook is that it is based on a true story. Each of the actors had the opportunity to listen to the audio recordings or watch the videos from the actual events—the telephone calls, Teresa’s rescue from the nursing home, and the final family showdown with the police and paramedics. These recordings informed and inspired each of the actors’ performances, and helped them capture the emotion and tension of these dramatic moments.

The audiobook cast of thirteen

Check out the actors’ comments and audiobook samples below

  • Jackie Blackmore, “Franke”
  • Lauren Potter, “Teresa”
  • Dayleigh Nelson, “Bill”
  • Cynthia Potvin, “Deirdre”
  • Bill Mackie, “Dad”
  • Paula Hoffmann, “Siobhan”
  • Rob Cottingham, “Conrad”
  • Sidika Larbes, “Phoebe”
  • Geoff Sugiyama, “The Cop”
  • Laurel Bailey, “Candi”
  • Divina Soriano-Leacock, “Perla”
  • Roshni Kashyap, “Woman from the 1970s”
  • Justin Smallbridge, “Silver Don”

JACKIE BLACKMORE is the lead narrator and plays Franke James

Jackie Blackmore
Jackie Blackmore, “Franke”

“This is a bold, brave, and enlightening story about fighting for human rights at home within your own family,” Blackmore says. “I was honoured to voice this important book by Franke James.”

Jackie Blackmore brings years of experience to the job of narrating Freeing Teresa. As a voice actor, she has an expressive range, conveying complex emotions: passion, fierceness, determination and love. She is an award-winning theatre, film, and TV actor, an improvisational comedian, a director, a teacher, and an award-winning playwright.

“Reading Franke James’ story and listening to the actual audio recordings of the family discussions was a haunting and transformative experience,” Blackmore says. “I was deeply maddened by the discrimination Teresa faced, but then inspired by Franke’s determination to defend her sister. The scariest thing is that this is a well-documented, true story. Franke was like an embedded journalist, recording everything as it happened.”

AUDIOBOOK EXCERPT: from Chapter 17, “Mount Everest”
In the midst of life-changing events, Franke decides to record her phone calls

I held the silver recorder in my hand as I weighed the pros and cons. If this all blew up, I would need a witness to what had really happened. By now my siblings had stopped answering my emails. It seemed like they didn’t want to put stuff in writing. I needed to start creating an audio record. Otherwise, it would just be my word against theirs. I’d be roadkill, and I would have failed to save Teresa.

But still, I was facing a gut-wrenching decision. I knew how to do this. I’d done it before. But I never thought that I’d be put in a situation where I might have to blow the whistle on my own siblings. I reminded myself that making a tape was like an insurance policy. I wouldn’t need to use it unless things went haywire. And then I’d have an objective record.

So, with my recorder connected to my phone and these confusing life-changing events swirling around me, I made the decision. I steeled myself, and—still on the phone with Siobhan—I pressed record.

FREEING TERESA, CHAPTER 17, Mount Everest (page 267)


LAUREN POTTER plays Teresa Heartchild

Lauren Potter, “Teresa”

“Playing Teresa Heartchild was so exciting!” Lauren Potter says. “I’m a strong advocate for disability rights, and so is Teresa. I was proud to play her because she had to fight so hard for the right just to be free. Everyone with Down syndrome deserves the right to decide where they live.”

Potter is best known for playing the spunky character “Becky Jackson” on the hit TV series, GLEE, for six seasons. She was nominated for a SAG Award for GLEE. Potter was also honoured with the SAG/AFTRA Harold Russell Award at the Media Access Awards for the series.

Potter serves as an advocate for those with disabilities through organizations including AbilityPath, Best Buddies International, the Down Syndrome Association, the American Association of People with Disabilities, and Special Olympics. She has worked with the non-profit on an anti-bullying campaign. Lauren is thrilled to be using her voice to speak out for other people with disabilities who may not have the same opportunities.

AUDIO EXCERPT: from Chapter 30, “Heartbreak Place”
“Hide My Feelings”, Teresa tells Franke why she is trying to hide her feelings

I looked at Teresa who was coping much better than me. “I’m upset. But you’re not upset?”

“I’m trying to hide my feelings,” she said.

“Why?” I asked with surprise.

“It’s about my father,” said Teresa.

“Why would you hide your feelings?” I asked again.

“Siobhan told me the news of what happened to my father.”

“What happened to your father?” 

“I don’t know,” she answered. “But she said they’re taking him to Sunnybrook Hospital.”

“No!” I said. “He’s not going!”

Freeing Teresa, Chapter 30, heartbreak Place (pages 194-195)


BILL MACKIE is Dad, the family patriarch

Bill Mackie
Bill Mackie, “Dad”

“My experience in portraying Franke’s and Teresa’s father was a privilege and an honour.” Bill Mackie says. “Listening to Franke’s real-time recordings of conversations she had with her father gave me real insight into the honourable gentleman her father truly was. He had to endure an ordeal, but he was ultimately Teresa’s ticket to freedom!”

Bill Mackie is a professional voice-over artist based in Vancouver who brought Shakespearean gravitas and warm sincerity to play the role of Dad. He has forty years of experience on the other side of the mic as a producer/director on national and international television. He has developed and produced Canadian dramas, as well as other content, and won many accolades in his long career.

AUDIO EXCERPT: from Chapter 25, “Stay with My Father”
Dad asks, “Why is it that I get to a certain age…”

“Why is it that I get to a certain age,” said Dad with exasperation, “and they decide to put me into one of those damned homes? I don’t want that. I want to stay with Teresa, where we are!”

“Right,” I said.

“It’s better for Teresa. It’s better for me,” Dad said, adding, “I do pretty well.”

“You do,” I agreed. I turned to Teresa. “Dad is ninety-one— at some point he won’t be around forever.”

“I know,” said Teresa.

“Where would you want to live?” I asked. And then we went in circles again with Teresa saying over and over again, “Stay with my father.”

“I guess it just means that I have to stick around for a while,” said Dad laughing.

Freeing Teresa, CHAPTER 24, STAY WITH MY FATHER, (page 169)


DAYLEIGH NELSON plays Bill, Franke’s partner and husband

Dayleigh Nelson
Daleigh Nelson, “Bill”

Dayleigh Nelson’s portrayal of Bill captures Franke’s husband’s honest, irreverent, and quick-witted personality. Dayleigh is a Canadian actor/ writer/ director currently residing in Vancouver, BC. His small-town roots and call to adventure bring a refreshing depth of insight, satire, and humour to his work.

Working with the others in the cast, Nelson appreciates the significance of this disability rights story. “Teresa’s story being given voice is important,” Nelson says. “Equally, Lauren Potter’s performance as Teresa is not only powerful but champions proper representation in the medium.”

AUDIO EXCERPT: from Chapter 23, “A Crack in Everything”
Bill tells Franke, “Maybe it’s time to surprise them.”

“Well, maybe it’s time to surprise them.” Bill’s blue eyes twinkled.

“Yes, it would be a great offer.”

“They would have to agree, because it’s their duty to act in Teresa’s best interest,” Bill said. “And then the agencies would have to take her off the crisis list.”

I loved Bill’s willingness to do the unconventional thing. But this was a huge step—a life-changing commitment. I was nervous.

“It would shock them,” I said.

“It would stop them,” Bill said.

Freeing Teresa, Chapter 23, A Crack in Everything (page 154)


CYNTHIA POTVIN is Deirdre, the bossy sister who insists she has complete power over Teresa

Cynthia Potvin
Cynthia Potvin, “Deirdre”

Acting as Deirdre, one of the story’s chief antagonists, Potvin strove to bring humanity to the role. She describes her approach: “It’s easy to view the darker characters as one dimensional, but I always try to find a small part of their vulnerability. Because ultimately behind anger is usually pain, fear and love.”

Cynthia began her voice career by studying Jazz voice and naturally moved into theatre, film and voice acting. In addition to Freeing Teresa, her recent acting credits include The Good Doctor, Add to Cart, and Strangers in the House.

AUDIOBOOK EXCERPT: from Chapter 33, “The Celebration”
Deirdre threatens to call the police.

We were stunned. We didn’t understand what Deirdre had just read to us. But then she issued a warning: “If you do not return Teresa, the police will come and escort her. And you just think of how awful it’s going to be for that poor little girl to be dragged back.”

“But Deirdre,” I protested.

“Return her!” she ordered. “I’m giving you your notice. And I’m hanging up now.” 

“Deirdre? Deirdre?” I pleaded.

“The police will come and get her,” she warned.

FREEING TERESA, CHAPTER 33, THE CELEBRATION (PAGE 234)


ROB COTTINGHAM is Conrad, the abrasive brother who thinks he’s “always right”

Rob Cottingham
Rob Cottingham, “Conrad”

“What really drew me to Freeing Teresa,” says Rob Cottingham, “is that it’s ultimately about the freedom and dignity that comes with being seen for who you really are and being able to decide your own future. We should want that for everyone. And between Teresa’s total clarity on what she did and didn’t want that future to look like, and Franke’s fearless determination to make that possible, this story gives me tremendous hope.”

Cottinghman explains how he approached the role: “Playing Conrad meant understanding that he doesn’t think he’s doing the wrong thing; nobody ever thinks they are. But he has that tunnel vision that comes with the absolute conviction that you’re right. Which means he can’t or won’t acknowledge the possibility that other people might have valid perspectives, or recognize the damage he ends up doing. I’ll admit there’s a little of that in me sometimes — I think maybe it comes with oldest-sibling territory. Being Conrad meant pulling at that thread and finding my inner bully, and it’s led to some bracing self-reflection!”

Rob Cottingham is a voice actor, comedian, podcaster and cartoonist. By day (and sometimes night), he’s a speechwriter and communications professional working for great progressive causes!

AUDIOBOOK EXCERPT: from Chapter 20, “A Bulletproof Plan”
Conrad laughs off Franke’s concerns about nursing homes

“If you read the news articles,” I said, “the investigations into the nursing home industry are—”

“Shocking,” Conrad interrupted. “I agree with you.”

“It is shocking! It’s like, how can we set Teresa up to get bullied and sexually abused?”

“We have to be an active part of her life,” he said. “And if she’s not okay, get her the hell out of there! And in the nursing homes that we went to, like Wheiry Lodge, the people were so bloody old. No one could abuse Teresa. They couldn’t catch her. They’re all in walkers and wheelchairs.”

“Conrad, you think that’s funny. Just last week, there was a news story about a guy who murdered one of the other residents.” 

“Yes, I did see that. We have to be very vigilant. Look, we’re up against the wall. We can’t do anything. We have a plan in place. And we must wait to see what the government can come up with.” 

Freeing Teresa, Chapter 20, A Bullet Proof Plan (page 138)


PAULA HOFFMANN plays Siobhan, the brainy sister who came up with the plan to put Teresa into “care”

Paula Hoffmann
Paula Hoffmann, “Siobhan”

Siobhan, performed by Paula Hoffmann, is the behind-the-scenes organizer. As the master planner who first proposed the plan to put Teresa into a nursing home, Siobhan drew on her inside knowledge about the healthcare system. In Chapter 18, she reveals to Franke’s shock that she owns three nursing homes, and says with annoyance that they serve a purpose. Siobhan is the sister who told Franke of her suspicion that their brother (Conrad) would not fulfill his promise to take Teresa after Dad’s death.

AUDIOBOOK EXCERPT: from Chapter 18, “They Can’t Send Her Back”
Siobhan explains why nursing homes are better than group homes

“She would be much better off in an apartment or a group home,” I said.

“The problem with the group home or apartment is that if it doesn’t work out, they will send her back. She still belongs to us. They can’t send her back from a nursing home.”

What? It sounded like she wanted to get rid of Teresa permanently. I objected, “Teresa won’t qualify unless—”

“She already has qualified.”

“On what basis?” 

“She’s forty-nine years old and has Down syndrome.”

“You can’t do that! What about Teresa’s human rights?”

Freeing Teresa, CHAPTER 20, THEY CAN’T SEND HER BACK (page 119)


SIDIKA LARBES is Phoebe, the sister who values family harmony above all else

Sidika Larbes
Sidika Larbes, “Phoebe”

The Canadian voice and TV actress, Sidika Larbes, acted as older sister, Phoebe. Larbes demonstrated a knack for channelling Phoebe’s voice: she is the perennial cheerleader, oozing with kindness, charm and secret agendas. She smiles sweetly while closing her eyes to anything that might be disturb the family harmony.

A gifted actress, Larbes can perform in multiple languages. Her mother is of Hungarian descent, and her father is Algerian. Born and raised in Vancouver, BC, Canada, she grew up in the West End, a colourful and community-driven neighbourhood.

AUDIOBOOK EXCERPT: from Chapter 31, “Kidnapped?”
Phoebe tries to convince Franke that Teresa should be left in the nursing home

Phoebe was trying to calm me down: This whole transition could have been so much better. But the fact of the matter is that now Teresa has moved out.

This was a preposterous assertion. Teresa did not “move out” voluntarily. Her right to decide where she lived was taken away.

But Phoebe believed in the system: We should just leave things as they are. It will work out. Teresa is clever, and cunning, and creative. With our support she will figure out a way through this.

I felt terribly disappointed. Phoebe urged me to reconsider: We should give Teresa a few weeks to adjust to life in her new home, really. We just need to let go. What’s done is done.  

No, I was not going to step back. What was done needed to be undone.

Freeing Teresa, CHAPTER 31, Kidnapped (page 202)


GEOFF SUGIYAMA is the righteous Cop

Geoff Sugiyama
Geoff Sugiyama, “The Cop”

The Vancouver voice actor and tea master known for his authoritative, deep voice and way with words, Geoff Sugiyama has narrated over twenty audiobooks. They include The Rise of Wolf 8, Lies My Doctor Told Me, and All of Us Strangers. He has also acted in several video games such as Galaxy Mobile and Eternal Return.

As “The Cop” in Freeing Teresa, Sugiyama brought power, intensity and dismissive authority to the role, which characterized the police actions during the apprehension.

AUDIOBOOK EXCERPT: from Chapter 35, “Apprehension”
The Cop explains why he must apprehend

The cop continued, “There’s an allegation that Deirdre has told us about. We’re here to act on it. Everything else is secondary. I’m duty-bound. I don’t have an option.”

Bill said, “What if the allegation is—”

“I’m not going to entertain a what-if.”

The cop wouldn’t even let us ask the question: What if the allegation is false? I was getting a very bad feeling about this. The cop continued, “I’m only going to entertain what was said and work on facts and issues. Legally, what do I have to do? What is righteous?” 

Freeing Teresa, CHAPTER 35, Apprehension (page 256)


LAUREL BAILEY is Candi, the outspoken sister-in-law who is always ready to give you a piece of her mind

Laurel Bailey
Laurel Bailey, “Candi”

The Vancouver actor is known for her work on stage in British Columbia, Canada and in London, UK, where, as the co-artistic director, Bailey, helped found the CanadianPhoenix, a theatre company dedicated to producing new Canadian plays.

As Candi in Freeing Teresa, Bailey brings Candi’s outgoing, biting style to life! Listen, and you’ll know why Candi cheekily called herself the family “out-law.”

AUDIOBOOK SAMPLE: from Chapter 34, “Return Teresa (Or Else)”

A different voice came from the phone, “Dad?”

Dad was still speaking when the voice interjected again, “Dad, can you hear me?”

“Pardon?” Dad asked, his voice softening.

“Dad, it’s Candi here. Can you hear me?” Deirdre had given the phone to my sister-in-law, Conrad’s wife. She must have been listening at Deirdre’s house.

“Yes, Candi?”

“Dad, we’ve worked very, very hard to make sure that Teresa has a safe place to live—”

Dad jumped on that: “She’s got a safe place to live. Here, with me!” And Dad had accepted my offer to take Teresa when the time came.

Candi waited for a second, then said, “Franke has come and upset the entire apple cart. You shouldn’t be mad at Deirdre and Chuck or anybody else. You should be mad at your daughter Franke. She has done nothing to help us.”

Freeing Teresa, CHAPTER 34, Return Teresa (Or Else) (page 239)


DIVINA SORIANO-LEACOCK is Perla, a support worker caught in the middle of a family battle

Divina Soriano-Leacock
Divina Soriano-Leacock, “Perla”

A versatile Canadian actor of Philippine descent, Soriano-Leacock crafts a dramatic portrayal of Dad’s support worker. Perla provided Dad and Teresa with years of in-home support and developed a strong relationship with both of them. However, Deirdre was managing Dad’s finances and wrote the cheques. So Perla was beholden to Deirdre and had to follow her instructions regarding the plans for Dad and Teresa’s care.

AUDIOBOOK SAMPLE: from Chapter 29, “Summer Camp”
Perla, who supported for Dad and Teresa, tells her story


My ears perked up when she told us that she was there when Teresa was taken.

Bill asked, “Who took Teresa away? Was it Conrad and Deirdre?”

And so, Perla told us her story. “They arranged it so that Teresa thought she was going to her day program. When I brought her downstairs, we saw Conrad’s car, and Teresa asked me, ‘Where is the taxi, Perla?’ And I said, ‘Maybe it will be a special trip for you. They’re picking you up and dropping you off at your program.’ And so, when I said goodbye to her, I just turned my back, because I didn’t want Teresa to see me. . . crying. And before I came up, I just stayed there, for a while there.”

Freeing Teresa, CHAPTER 29, Summer Camp (page 184)


ROSHNI KASHYAP plays a woman who was unfairly institutionalized in the 1970s

Roshni Kashyap
Roshni Kashyap, “Woman from the 1970s”

Roshni Kasyap is a voice actor, rapper, and visual artist with Down Syndrome. “Express yourself from the inside and out,” she says, describing her approach to creativity. “Don’t hold it in, no matter how much it hurts. Say what’s in your heart!”

In Freeing Teresa, Kashyap takes on the role of an intellectually disabled woman who was unfairly institutionalized in the 1970s. The woman was interviewed in the 1979 documentary Exploding the Myth, the same film that Teresa was featured in when she was just thirteen years old.

AUDIOBOOK SAMPLE: from Chapter 4, “Exploding the Myth”

A young woman explains why institutionalization is so unfair


The documentary features interviews with former residents.

A young woman with dark, curly hair and glasses pleads for respect: “We’re just like every other person. I’ve never committed a serious crime—to be put away for so many years of my life. Neither killed nor harmed anybody else!”

Freeing Teresa, CHAPTER 4, Exploding the Myth (page 31-32)


JUSTIN SMALLBRIDGE plays Silver Donald Cameron

Justine Smallbridge
Justine Smallbridge, “Silver Don”

A Vancouver voice actor with numerous credits in audiobooks, video games, and corporate communications, Justin Smallbridge plays Silver Donald Cameron. The late Canadian journalist and author interviewed Franke in Halifax in 2013 as part of his Green Interview series (which is now part of the National Archives). The Green Interview focused on Franke’s environmental activism and two of her books, Banned on the Hill: A True Story about Dirty Oil and Government Censorship and Bothered By My Green Conscience.

AUDIOBOOK SAMPLE: from Chapter 11, “My Troublesome Conscience”

Silver Donald Cameron asks Franke about the redactions in her FOI documents 

I’m struck by the redactions,” Silver Don said. “In many cases, most of the message is blacked out on the basis of the ‘Defence of Canada’ or for ‘Reasons of International Security.’ ”

“I would love to see what’s under those redactions,” I said. “My hunch is that it has nothing to do with the Defence of Canada. It was actually ‘embarrassment to the government’.”

“This has come back to haunt them in a big way with the book and the whole media campaign. I mean, you advertised in The Hill Times!”—the must-read news rag for Canada’s political insiders—“I am sure someone is saying, ‘My God, has that woman ever put the cat among the pigeons on Parliament Hill!’ ” 

“I think a few spoonfuls of Cheerios may have been spat out! But seriously, this is a democracy, and many voices should be allowed to speak. That’s why I fought back so strongly.”

“It’s really an erosion of our political freedom, isn’t it? One of the big things that comes out of this is the willingness of corporations and governments, not just to shade the truth or make the case, but to flat-out lie.”

Freeing Teresa, CHAPTER 11, My Troublesome Conscience (page 83)


Freeing Teresa Audiobook Cover

Listen to the Freeing Teresa Audiobook

Freeing Teresa is a true story about disability, sisters, and standing up for the right to be yourself, brought to life by a cast of thirteen actors. The audiobook is live now. Find it on Audible, Apple Books, Spotify, and at the public library. The award-winning memoir is available in all formats on Amazon, Bookstore.org, and most online bookstores.

The Freeing Teresa audiobook on:

  • Audible.com
    • Audible.ca | Audible.co.uk
  • Spotify
  • Apple Books
  • Kobo
  • Libro.FM
  • Google Play
  • Audiobooks.com
  • Public Libraries
  • And others

Filed Under: Audiobook, News Tagged With: #audiobook, #downsyndrome, #freeingteresa, fullcast

Q&A with Franke James

September 12, 2024 by Franke James

Franke James with her sister Teresa at the Inclusion BC 2024 conference, Nanaimo, BC
Franke James with her sister Teresa at the Inclusion BC 2024 conference, Nanaimo, BC

“Last month, I had the pleasure of reading Freeing Teresa by Franke James – a moving, emotional and powerful read about doing what’s right, no matter how difficult it may be. I’m so thrilled to be sharing a recent Q & A with Franke where she talks about Teresa, her books, and the hurdles she had to overcome to get this book published.” ~ Emily Quinn, A Quintillion Words

Emily Quinn’s interview with Franke James


In your own words, how would you describe Teresa? What is your favourite memory of her over the years?

FRANKE: There are so many! Here are just two memories. When Teresa was a toddler, I would tag along with my Mom and watch Teresa take personal training lessons. By age five, she was climbing the gym ropes. That was an eye-opening lesson for me that Teresa could accomplish amazing things with patience and perseverance. 

Teresa climbing the gym ropes, 1969. Photo by Teresa’s mother
Teresa climbing the gym ropes, 1969. Photo by Teresa’s mother

As an adult, one watershed moment was when Teresa did her Change.org video. Previously, as a person with Down syndrome, she was not given any respect to direct her own life. In the 2014 video, Teresa marches along confidently, saying that she is “a female with Down syndrome” and wants the government to “say sorry” for taking away her right to decide, and putting her in a nursing home. It made me proud to see Teresa speaking up for herself. Since then, I’ve had many glowing moments as I’ve watched her blossom as an artist, author, and self-advocate. Finally, she is free to be herself.

Teresa's Change.org petition video which launched on March 21, 2014
Teresa’s Change.org Petition Video, March 21, 2014.
Filmed in Victoria, B.C. by Billiam James

When did the idea of writing Freeing Teresa come to you? Were you experiencing a certain hurdle? Or did you always know you wanted to write about it one day?

FRANKE: Over a decade ago, I imagined that one day, I would write about what was happening to Teresa, my youngest sister. In 2013, all of my other siblings were intent on putting her into a nursing home. I was horrified and objected. However, one sister justified the group’s decision by saying that the government care agency had assessed Teresa, and taken away her right to choose where she lived. Another sister said Teresa was on the verge of Alzheimer’s. They all claimed she needed 24/7 care. I didn’t believe a word of it. Instead, I believed in Teresa. I saw her as being the same as she always was and enjoying life. 

Franke and Teresa in the Terry Fox event, 2011. Photo by Billiam James
Franke and Teresa in the Terry Fox event, 2011. Photo by Billiam James

Did you find it difficult writing about your family, specifically some of your siblings? Is there anything you regret?

FRANKE: I regret that we lost our family. It’s a terrible blow, but sadly that was the price for standing up to the group and freeing Teresa. It was challenging to tell this story, but the hurdles forced us to find creative solutions. Since my family still doesn’t want to talk about this misadventure, I’ve given my siblings pseudonyms and whited out their images in photos. Also, Teresa is using a Pen name. These techniques have given me the freedom to tell this story and also gave a distinctive look to the book.

Bill and Franke host a summer dinner party for two of her sisters and their spouses in 2013.  Photo by Franke James
Bill and Franke host a summer dinner party for two of her sisters and their spouses in 2013. Photo by Franke James 

People have come up to me after my book talks, and confided that they know a young person who has been put in a nursing home. This growing awareness is so important. The statistics show that Teresa is the tip of the iceberg. She is just one of many to have experienced forced care. It is happening to people with disabilities around the world. Nursing homes have become the new Institutions. 

Franke James led a panel called, “The Quiet Reinstitutionalization: Young People with Disabilities in Long-term Care.” Inclusion BC 2024 conference
Franke James led a panel called, “The Quiet Reinstitutionalization: Young People with Disabilities in Long-term Care.” Inclusion BC 2024 conference

Did you give your siblings advance warning of this book?

FRANKE: Yes, I gave them over ten years warning! Ample time for them to apologize to Teresa. But there’s been no apology yet. Of course, they also told me they’d never read my book. In 2013, on the same day we rescued Teresa, I told my sister, Siobhan, “If you block us on this, we will be taking this public. We’re going to go to all the different advocacy organizations. And we are going to make a really big deal of this. Because this is not right.”

Unfortunately they did block me, which I’ll talk about in the next book. Four days after we rescued Teresa, armed policemen came to my door to take Teresa back to the nursing home. Holey Moley, it was a very scary time. Fortunately, with legal help and documentation, we were able to assert Teresa’s right to stay with us.

How long did it take you to write Freeing Teresa, including writing, editing, any research and sourcing photographs?

FRANKE: A long time! In the actual moment, I made a record of the events that were swirling around me. (I learned this from my work on www.officepolitics.com.) I wanted to make sense of what was happening. But, as it turned out, all my emails, journals, photos, videos, and audio recordings, have become essential material for my book.

In 2020, when Covid hit, I started to write Freeing Teresa in earnest. Luckily, my husband, Billiam James, came on-board as the co-author, and we worked together to get the book written and published. Every week we’d sit on a park bench overlooking Lost Lagoon, in Stanley Park, and read a chapter to each other. It was fun and improved each chapter immensely. We published the print book in October 2023.


What is your favourite book? Is there a specific author or person who inspired you?

FRANKE: If I can only pick one book, I would say it has to be ENTWINED by Joyce Scott, published in 2016. Remarkably, Joyce rescued her twin sister, Judith, from an institution where she’d lived for 35 years. Their story was very inspirational to me, coming three years after Teresa came to live with me and my husband. Joyce’s book Entwined has some parallels to Freeing Teresa in that we’re both authors who have written memoirs about our sister’s with Down syndrome. Both of our sisters were trapped in the “care system” and we helped them get out. And both our sisters turned to art to express themselves. Judith Scott became a famous fibre artist and her art now hangs in the MoMA. It is a fascinating heart-warming story!


If you could tell a past version of yourself some advice for the future, what would it be?

FRANKE: Well, it could be something my mother tried to teach me when I was a cocky teenager, but I didn’t fully appreciate at the time. I used it in a dedication to my Dear Office-Politics book. I think she was very wise.

“Read between the lines.
Never take people at face value.
Listen to what people say, but watch what they do.

Put yourself in the other person’s shoes.
Never feel sorry for yourself.”


Tell us about your previous books and what you’re currently working on.

FRANKE: Since 2009, I’ve published three other books. They are all very different—and yet they were essential training for Freeing Teresa. Bothered by My Green Conscience taught me how to fight City Hall and win. Dear Office-Politics taught me to practice making ethical decisions—so I wouldn’t get run over by an ethical dilemma. And Banned on the Hill taught me many things, but how to use F.O.I. tools to dig for evidence was so helpful in Teresa’s case.

Our latest exciting news is that we have just published the audiobook for Freeing Teresa! It features a full cast of over a dozen actors, including Jackie Blackmore, Dayleigh Nelson, and Lauren Potter (of GLEE fame). Two of the actors have intellectual disabilities, which means we have “authentic representation” — something that is very important to me. It was a very ambitious dream to do the audiobook — and a full-cast one at that! Now the audiobook elevates my memoir to a whole new level. The full-cast of actors brings our true story to life in dramatic and exciting ways. I’m so happy we had the courage to do it.

Advertisement for Screen International Magazine, September 2024 with video image of Franke James during the rescue on Nov 30, 2013 and Teresa sitting the nursing home bed, blowing a whistle
Advertisement for Screen International Magazine, September 2024
Is there any advice you would give to a person with Down syndrome or anyone who cares for them?

FRANKE: Dream big! Assume that you can do anything you set your mind to! That’s good advice for the person with Down syndrome and also for the people who support them. If we have positive expectations for people with Down syndrome, we’ll give them abundant opportunities throughout their lives. And amazingly, these positive assumptions can become reality, like they have for Teresa Heartchild who was named a Champion for Change by B.C.’s Human Rights Commissioner.

Teresa's Video asserting that people should assume that she can do something
Franke’s post: https://freeingteresa.com/assume-that-i-can/
About the author

The spark for Franke James’ newest book, “Freeing Teresa,” was lit ten years ago. In 2013, Franke and her husband, Billiam James, helped her younger sister get out of a Toronto nursing home, regain her decision-making rights, and get a public apology from the Ontario Minister of Health.

Earlier that same year, Franke had published Banned on the Hill, which led to her winning the BC Civil Liberties Award for Excellence in the Arts in 2014. Her related poster campaign, “Do Not Talk About Climate Change,” appeared in three Canadian cities and Washington, DC. In 2015, Franke was awarded PEN Canada’s Ken Filkow Prize for “tenacity in uncovering an abuse of power and commitment to fostering a national conversation in the face of censorship.” Franke lives in Vancouver, BC, with her husband and her sister, Teresa.

Filed Under: Interviews, News Tagged With: #downsyndrome, #freeingteresa, #memoir, #teresaheartchild, franke-james, siblings

Assume That I Can

August 18, 2024 by Freeing Teresa

On March 21, 2024, World Down Syndrome Day, Coor Down, launched their worldwide campaign, Assume That I Can, with the support of six international Down Syndrome associations, including the Canadian Down Syndrome Society. The breakthrough video starring actor Madison Tevlin went viral.


“Our negative assumptions about people with Down syndrome can lead us to treat them in such a way that these assumptions become reality. In sociology, this is called a ‘self-fulfilling prophecy’. Why not reverse our perspectives? If we have positive assumptions about people with Down syndrome, we’ll give them more opportunities in their schools, workplaces, relationships and activities. And maybe these positive assumptions will become reality.” YouTube Link

Teresa Heartchild, Assume That I Can video, March 21, 2024

Madison Tevlin inspired Teresa’s true life video!

Madison’s video inspired us to create a video for Teresa Heartchild for World Down Syndrome Day that told Teresa’s story and how she upended assumptions in her own life!

“Ten years ago, people assumed my sister’s life at 49 was over. Teresa Heartchild fought back. 25,000 people signed her petition. Her supporters sent a public letter to the Ontario Minister of Health. Finally, the government apologized,” says Franke James. “Now Teresa is free. But thousands of others are getting put into nursing homes showing that what happened to Teresa is not a rare event. She represents the tip of an iceberg.”

Although, the old institutions have closed, the sad reality is that today there are thousands of young people with disabilities who are forced to live in nursing homes. This is a key civil rights issue for all people with disabilities—the right to decide where you live. As the UN Special Rapporteur Catalina Devandas-Aguilar said, “The deprivation of liberty on the basis of disability is a human rights violation on a massive global scale.”

Read the award-winning book Freeing Teresa: A True Story about My Sister and Me by Franke James, with Billiam James and Teresa Heartchild. It tells how low expectations almost closed the door on Teresa’s future.

Freeing Teresa audiobook cover in orange

Freeing Teresa is also available as an audiobook narrated by Jackie Blackmore. The full-cast includes Lauren Potter, Dayleigh Nelson, Cynthia Potvin, Bill Mackie, Paula Hoffmann, Rob Cottingham, Sidika Larbes, Geoff Sugiyama, Laurel Bailey, Divina Soriano-Leacock, Justin Smallbridge, and Roshni Kashyap.


2024 Awards for Freeing Teresa


WINNER of 4 HUMAN RELATIONS INDIE BOOK AWARDS, 2024

Gold Award: Family Challenges
Gold Award: Special Needs (Disability Rights)
Silver Award: Leadership
Silver Award: Inspirational 

WINNER of 5 INTERNATIONAL FIREBIRD BOOK AWARDS 2024 (2nd quarter): Winner, Judge’s Pick
1st place, Social/Political Change
1st place, Special Needs (Disability Rights)
2nd place, Leadership

2nd place, Inspiration

#WDSD2024 #WorldDownSyndromeDay #EndTheStereotypes #assumethatican #FreeingTeresa

Filed Under: Videos Tagged With: #bookawards, #downsyndrome, #freeingteresa, #memoir, #teresaheartchild, assumethatIcan, civil rights, franke-james, MadionTevlin, Video

  • Page 1
  • Page 2
  • Page 3
  • Go to Next Page »

News | audiobook | Interviews | Reviews | Authors | Contact
@frankejames is on Instagram, Mastodon, and Linktree
Freeing Teresa | Copyright © 2025 · Franke James